a rare, necessary and welcome light

A lifetime of wilderness experiences provides an exquisite frame and potent context for dementia’s unstoppable exhausting robbery.

Lisa writes “If the fog lifted near midday, the sun was warm, but if the wind was blowing down the glacier, it carried the coolness of the ice with it. I often felt chilled to the bone beneath the warmth of my exertion that summer.” it perfectly describes multiple experiences that are forced together. This forcing of previously unrelated experiences sums up both the challenge and the opportunity that dementia provides for the caregiver.

Her story provides a vivid description, so as to facilitate beneficial recognition and familiarity, but not so detailed that our individual experience is compromised or derailed. Lisa Steele-Maley’s book is a rare, necessary, and welcome light for a journey filled with darkness and confusion.